We’re all going a little bit crazy here in room 550 of Mount Sinai’s Kravis Children’s Hospital. The heater is knocking (really, I think there’s a little man in there with a hammer banging on the pipes), the alarms are beeping (every time a medication finishes the dang pump beeps till the nurse turns it off) and the ambulances are blaring down on 5th Avenue below us.
But the real problem is Oscar’s GI system. We’re trying to get to the bottom of it (pun intended) but it’s been a two day tear-filled crisis. Most of the tears are coming from the uncertainty of when he’ll be released, but a few are from the stomach pain. Dr. Cuddihy (the “C” of our Drs. ABC surgical team) is taking the lead — calling the national PWS association and consulting with their expert orthopedic surgeon about surgery induced GI issues. With Oscar’s slow moving system he needs medications even in “normal” times to keep things moving. So now he’s on a whole cocktail of drugs. Hopefully he’ll feel better soon.
There’s also lots of great news. Drs. A and B stopped by yesterday and were thrilled to hear Oscar say he still had NO PAIN. They took a photo of him pointing to the smiley face on the pain chart. He’s walking a ton and with fewer pain medications in his system he’s a lot more like himself.
Still hoping to go home today. If we’re not released I might pull out the IV and sneak him down the back staircase. Here’s a photo of him resting while I plan our escape and one closed-eye messy haired one of him with Dr. Antonacci and Dr. Betz.